Purple Day/Journée Lavande pour l’épilepsie

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Source : Purple Day

50 Million people have epilepsy world wide.

It is estimated that 1 in 100 people have epilepsy.

In 50% of cases, the cause is unknown.

Purple Beginnings

Cassidy Megan created the idea of Purple Day in 2008, motivated by her own struggles with epilepsy. Cassidy’s goal is to get people talking about epilepsy in an effort to dispel myths and inform those with seizures that they are not alone. The Epilepsy Association of Nova Scotia came on board in 2008 to help develop Cassidy’s idea which is now known as the Purple Day for epilepsy campaign.

Epilepsy Association of Nova Scotia and The Anita Kaufmann Foundation

In 2009, the New York-based Anita Kaufmann Foundation and Epilepsy Association of Nova Scotia joined forces to launch Purple Day internationally. As the global sponsors of Purple Day, both organizations are committed to partnering with individuals and organizations around the world to promote epilepsy awareness.

The combined efforts of AKF and EANS have lead to the involvement of numerous organizations, schools, businesses, politicians and celebrities around the word. On March 26, 2009, over 100,000 students, 95 workplaces and 116 politicians participated in Purple Day. The principal sponsors also developed marketing and media materials available for download free of charge.

Learn more about the Global Purple Day Planning Committee.

Action:

Here are some ideas on how you can help promote Purple Day and Epilepsy within your community.

  • Contact your local association and ask to volunteer
  • Hold a fundraising event to support your epilepsy agency
  • Contact your local or national Politicians and ask them to wear Purple on March 26.
  • Offer to set up an educational display in your workplace or school to promote education about epilepsy and seizures
  • Ask local businesses to help you promote Purple Day
  • Share Purple Day information and Epilepsy facts on your Facebook and/or Twitter accounts.
  • Donate your Facebook Status
  • Host a Coffee Party or social event with Friends.
  • Get a local daycare involved in the Purple Day Bunny Hop Campaign
  • Organize a local walk or run in support of Purple Day and Epilepsy

 

These are just some ideas of how you can make a difference in your local community to help raise awareness about epilepsy. You can find various materials to help you in the media section of the purple day website.

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Cette journée porte le nom de « Purple Day for Epilepsy » pour le Canada anglais et le reste du monde.

Cette journée fut la brillante idée de Cassidy, une jeune fille de 9 ans de la Nouvelle-Écosse, elle-même atteinte de l’épilepsie. Pour le 26 mars 2008, elle invita son école à réaliser une journée sur ce thème, en portant quelque chose de couleur mauve ou lavande pour sensibiliser les jeunes face à ce trouble neurologique. Ainsi, pour que ceux concernés puissent avoir une vie décente et une place comme les autres.

Cette année, des organismes canadiens comme Épilepsie Montréal Métropolitain veulent mettre en œuvre des projets auprès des jeunes dans les écoles et leur entourage. L’objectif est de sensibiliser les gens face à l’épilepsie et de faire du 26 mars, la journée Lavande pour l’épilepsie, une journée reconnue à l’échelle nationale !

Quant à nous, nous pouvons démontrer notre appui à cette cause en portant, le 26 mars 2009, quelque chose de couleur mauve ou lavande ou de toute autre façon en communiquant avec Épilepsie Montréal Métropolitain au (514) 252-0859.

Actions:

Portez la couleur lavande et pour plus d’information sur Cassidy ou la journée Lavande, visitez : www.journeelavande.org ou www.purpleday.org